Sunday, October 9, 2011

Scared - hypocondriac or being my own advocate?

I'm scared for my health.  I'm scared of all of the meds I'm taking prednisone,antidepressants/anti anxiety/stimulant (for fatigue)., and supplements like fish oil and Vitamin D, and  thyroid .. some others as needed).
 I felt like SHIT yesterday (10/8).  Worse than in a long time. Trying to keep a food/med/"how do I feel" journal ... I need to remember to keep it up to date.  I just started taking this new supplement called NAC or  N-Acetylcysteine.  I got the idea from this clinical trial .
I mentioned this to my brand new, young cute pulmonologist  and he told me to hold off .... ugh.  I haven't heard any bad things about it yet. But since I'm feeling shitty, maybe I should stop.
I also noticed my neck glands hurt today, are swollen more than usual.  I never get sick, but with the prednisone, I know my immune system is suppressed so maybe I am just getting plain sick.  I slept until 3PM yesterday!  
Monday I have a follow up with the nephrologist who I'm sure is going to tell me my GFR is still too low.  She retook the test but I'm sure it's still off.  I had especially high blood pressure that day.
When I saw the pulmonologist my blood pressure was better.  Normally, it is on the lower side of normal however, I take adderall and that could be why. On the other hand she mentioned something about blood pressure in the lungs.
I really need a doctor to go over all my medications. I have three red flags when I check the interactions. The doctors see that too. I see it on their screen.  I've been taking antidepressants for 25 years. Nobody ever checked my kidney counts during that time.  Also, I get palpitations. I thought it was the timing of taking the adderall or sometimes just plain anxiety.  But I read something today that a woman was misdiagnosed for 6 years with depression and anxiety when what she really had was a pulmonary embolism.
I'm so confused.  Am I being a hypochondriac, or am I just looking out for my own health, since MCTD is so complicated?